Ypsilanti woman, daughter featured on 'Katie Couric Show' to discuss rare syndrome
Cristina Trapani-Scott and her daughter Kiki Peck appeared on the "Katie Couric Show" on Jan. 8.
Courtesy photo | KatieCouric.com
An Ypsilanti woman and her daughter appeared on the "Katie Couric Show" Tuesday to discuss children with health conditions that can be difficult to comprehend, MLive reports.
Adrian College adjunct professor Cristina Trapani-Scott's daughter Kiki Peck has Kniest syndrome, a rare form of dwarfism.
The episode was about a book written by Andrew Solomon, titled “Far From the Tree: Parents, Children and the Search for Identity."
Peck, 14, has difficulty with range of motion and walking. She was born without type II collagen in her cartilage, making her bones thinner and weaker than average, according to MLive. The mother and daughter talked about how their relationship has been strengthened due to the syndrome.
Read the full MLive article here.
See a video clip of the episode below:
Comments
CincoDeMayo
Sun, Jan 13, 2013 : 10:18 a.m.
Great article. Great story. Kiki is a beautiful young woman and strong individual. Any time people can serve as role models and inspiration to others, whether they have special needs or not, it is a worthy effort. For parents of babies, or young children, who have special needs and are facing so much uncertainty, seeing positive outcomes is extremely comforting. I think since not all outcomes are as satisfying as others, for parents of older special needs kids who are still struggling in a severe manner, these stories can be bittersweet. The stories are no less valuable, however; that "can do" spirit can be inspirational to anybody. Thanks Kiki!
jns131
Sat, Jan 12, 2013 : 3:48 a.m.
You have a special need child. We know about all sorts of problems our special needs children have. Why display it on television unless you are asking for money? Sorry but this is not news. Just another way for parents to vent.
a2gretta
Sat, Jan 12, 2013 : 4:30 p.m.
This is an article which broadens my view of the world. It also serves as a reminder that we don't have support in place, emotional as well as financial, for families who need it. News - noun ( usually used with a sing. v. ) 1. a report of a recent event; intelligence; information: His family has had no news of his whereabouts for months. 2. the presentation of a report on recent or new events in a newspaper or other periodical or on radio or television. 3. such reports taken collectively; information reported: There's good news tonight. 4. a person, thing, or event considered as a choice subject for journalistic treatment; newsworthy material.
jns131
Sat, Jan 12, 2013 : 2:02 p.m.
Negative me away. But it is so true. With all the cuts and increase in medical costs, nobama care is going to cut into their budget as well. Special needs children cost a lot of money and it is money the state and feds do not have. Again debt ceiling? Whats that? There is no more money in the coffers.
mermaid72
Sat, Jan 12, 2013 : 1:56 p.m.
Where does the story mention asking for money? It wasn't a way to vent, simply an explanation of a rare disorder, and how the family dealt with it. GEE!
microtini
Sat, Jan 12, 2013 : 1:35 p.m.
I know what jns131 is talking about. They're not a miserable human being, just another struggling family struggling to do the right thing in a society that offers little in the way of support.
scenedujour
Sat, Jan 12, 2013 : 1 p.m.
Seriously, is that the only thing you got from this story? Wow! How did you become such a miserable human being? Maybe someone needs to remind you of the old adage, "if you don't have anything nice to say, don't say anything at all"
Tara Neil Gabel
Fri, Jan 11, 2013 : 11 p.m.
Hi! What an inspiration Cristina and her mother are! My 11 month old baby girl has Kniest (the same form of Dwarfism as Kiki) listening to her sing and share her hopes and dreams was so nice to hear from a 14 year old's point of view:)
Cristina Trapani-Scott
Sun, Jan 13, 2013 : 12:26 a.m.
Tara! This is Cristina and I just wanted to say that your response is extra special, because our whole reason for even allowing Andrew Solomon to interview us, and consequently Katie Couric, was that we hoped that it would offer a little comfort and reassurance to other families. When Kiki was born all I found was a small paragraph telling me what her medical needs might be. There were no books to reassure me that things would be okay. We did meet others with Kniest a bit later. Anway, I just wanted you to know that of all the responses we have had in this Far From the Tree journey this is the one that makes me feel the most that the journey was worthwhile.
G-Man
Fri, Jan 11, 2013 : 10:02 p.m.
I thought Christina was from Tecumseh? I think she lived there when she worked for the Tecumseh Herald......
treetowncartel
Fri, Jan 11, 2013 : 8:41 p.m.
Well tat will humble you. Good for them.