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Posted on Sat, Aug 25, 2012 : 5:57 a.m.

Michigan Ovarian Cancer Alliance will Turn the Town Teal to raise awareness of killer disease

By Janet Miller

Marcie Paul & Pam Dalhmann 8.25.12.JPG

Marcie Paul of West Bloomfield, left, is an ovarian cancer survivor and the vice president of the Michigan Ovarian Cancer Alliance. Pam Dahlmann of Ann Arbor, right, is the co-founder of the organization, along with her mother, Geri Fournier, who died of ovarian cancer.

Janet Miller | For AnnArbor.com

Despite a family history of cancer and her training as a nurse, Geri Fournier missed her own symptoms of ovarian cancer. She died at the age of 68, two years after she was diagnosed with late-stage cancer, wondering if things would have been different if she had noticed the warning signs earlier.

Fournier and her daughter, Pam Dahlmann of Ann Arbor, didn’t want other women to discover they had the disease after it became too late to do much about it, so they cofounded the Michigan Ovarian Cancer Alliance in 2011 as a way to promote early detection and offer support. While Dahlmann’s mother is gone, her work continues.

MIOCA, a partner member of the Ovarian Cancer National Alliance, will spread the word about ovarian cancer during September, which is Ovarian Cancer Awareness Month, and with a Turn the Town Teal effort. (In the way that breast cancer awareness has pink as its signature color, ovarian cancer has claimed teal.)

On Thursday, Aug. 30, thousands of teal colored ribbons will be tied to lamp posts, utility poles and other places in Ann Arbor, Ypsilanti, Chelsea, Dexter and more than a dozen other Michigan communities as a way to raise awareness. There will be awareness activities at farmers’ markets, art fairs, a University of Michigan football tailgate and more.

While 300 cities around the country will mark Ovarian Cancer Awareness Month, Michigan is the only state to have a multi-community effort, Dahlmann said.

Ovarian cancer is the deadliest of gynecologic cancers and the fifth leading cause of cancer-related death among women.

Awareness saves lives, Dahlmann said. “Your chances of a positive outcome are so much better when it’s found in Stage 1 or 2.” Her mother’s was diagnosed in Stage 4.

Once Fournier was diagnosed with ovarian cancer in the fall of 2009, she went looking for help. But there was no support or advocacy group for ovarian cancer in Michigan. That’s when the mother and daughter decided to start MIOCA.

While both Dahlmann and her mother were trained as nurses, the ovarian cancer diagnosis came as a shock, even though Dahlmann’s maternal grandmother had died from ovarian cancer. It’s a sly disease. The symptoms masquerade as minor health annoyances or other medical conditions - bloating, feeling full quickly, abdominal pain, frequent urination. Unlike breast cancer and cervical cancer, there’s no test for ovarian cancer. So less than 20 percent of ovarian cancer is diagnosed early, when it is most treatable.

Around the time Fournier was diagnosed with ovarian cancer, Marcie Paul of West Bloomfield was told she had it, too. “While ovarian cancer usually whispers, mine was shouting,” Paul said. “I had a pelvic mass.” But when doctors went looking for it using ultrasound, it was hiding, she said. It took doctors six months to finally make the diagnosis.

Ovarian cancer is not among the most common forms of cancer, said Paul, who is now MIOCA’s vice president. Ovarian cancer doesn’t receive the same attention as breast cancer, either by the public or the medical community, she said. “To be honest, there’s less than a 40 percent survival rate for five years. ” The five-year survival rate for women diagnosed with breast cancer is 89 percent.

“There are not a lot of survivors around to organize and create that kind of awareness. There’s a void,” Paul said.

Now she is trying to fill that void. Paul has lobbied lawmakers and speaks about ovarian cancer wherever she is invited.

For more information on National Ovarian Cancer Awareness Month, go to http://www.mioca.org/events.

Comments

bam

Thu, Aug 30, 2012 : 7:38 p.m.

Thank you so much ladies and all volunteers participating in the teal ribbon tying. I have been managing ovarian cancer for the past 8 1/2 years. I feel very fortunate that I live in the Ann Arbor area as we have an amazing staff of onc/gyn doctors. I would be remiss not to mention the equally extraordinary infusion nurses. They rock!!!

justcurious

Mon, Aug 27, 2012 : 1:19 a.m.

I am just over 4 1/2 years past my ovarian cancer diagnosis. I had my yearly gynocological check up and all seemed well. But a short time later I thought that I had urge incontinence. I made an appointment at the U of M for that. The doctor examined me once again and said they could fix that. But I felt "wrong". I could feel "something" in the area of my right ovary. I went back to my family practice and as examined a 3rd time. The doctor scheduled me foe surgery within one week. It turned out to be ovarian cancer. I had a "huge" tumor on my right ovary according to my surgical records. It was over 10 centimeters wide. I was lucky, I was stage 1. They removed everything, but still did the vaginal sling for the incontinence. I believe the tumor was the cause of that. I was so lucky to have insisted. I required not radiation or chemo. Women must advocate for themselves.

Michigan Man

Mon, Aug 27, 2012 : 12:25 a.m.

Hope all will remember George Morley, MD from Ann Arbor. Dr. Morley is often remember as the "father" of Gynecologic Oncology. Dr. Morley at U of M is viewed, remembered and recognized as the early medical/scientific/humanitarian leader in the field of treating gynecologic tumors. A fine, gentle and caring Ann Arbor man with family still in Ann Arbor. May God bless the memory of Dr. Morley for ever!

Julia Mattucci-Clark

Sat, Aug 25, 2012 : 6:04 p.m.

Thank you so much volunteers!!! I will be putting some teal ribbons up around my trees outside my home.

Pam Dahlmann

Sat, Aug 25, 2012 : 2:47 p.m.

Thank you, Ann Arbor.com/Janet Miller for such a great article! Only one clarification....Marlena Studer was instrumental in founding MIOCA, too.

frida

Sat, Aug 25, 2012 : 1:11 p.m.

I am an ovarion cancer survivor! I was diagnosed March 23 2011, during surgery to remove a cyst from my ovary! Luckily it was STAGE 1 and I only had to endure 6 rounds of Chemotherapy! I am so lucky unlike many other woman out there! I have been cancer free for 1 year now! Early detection is definately the key to a high survival rate!!!!

UtrespassM

Sat, Aug 25, 2012 : 8:45 p.m.

Happy for you.

Pam Dahlmann

Sat, Aug 25, 2012 : 2:48 p.m.

We would love, Frida, if you would join our efforts...please email us @ www.mioca.org.

ldwc

Sat, Aug 25, 2012 : 10:11 a.m.

Great work, Pam, and all the volunteers!